Epidermolysis Bullosa (EB) – “The Worst Disease You’ve Never Heard Of.” Epidermolysis Bullosa (EB) is a rare genetic connective tissue disorder, the most common symptom is extremely fragile skin that blisters and tears from minor friction or trauma. Internal organs and bodily systems can also be seriously affected by the disease. EB is painful and debilitating,…
YOU ARE THE CHRISTMAS PINE WHEN YOU VIGOROUSLY RESIST THE WINDS AND DIFFICULTIES IN LIFE. YOU ARE THE CHRISTMAS DECORATIONS WHEN YOUR VIRTUES ARE COLORS THAT ADORN YOUR LIFE. YOU ARE THE BELLS OF CHRISTMAS WHEN YOU CALL, CONGREGATE, AND SEARCH TO UNITE. YOU ARE ALSO THE CHRISTMAS LIGHTS WHEN YOU ILLUMINATE WITH YOUR LIFE…
When we inquired about what she wanted for Christmas, Maria asked for shoes, and food for her eight siblings. She needs footwear that can keep her feet warm while she harvests firewood in the mountains of Guatemala. Jose’s (right) parents asked for a wheelchair for their son, who has never walked after suffering a traumatic…
In a former post, I wrote about Caroline, a beautiful Jersey bovine that our board vice president, Mike McNevin and I owned while growing up in rural Kentucky. Typical of her breed, Caroline delivered high volumes of milk daily, and when left to sit in the milk pail, the cream would rise to the top;…
This is what sometimes happens when Mayan babies see white people for the first time. They express their fear at a fundamental level; vocal and raw and real. Manuela didn’t mind. You can see it in her face. In fact, she is delighted that her baby brother was upset, because one of the things she feels…
Two months ago this was how Alba, her brother and her mother survived; in a dark adobe home, sitting on their one piece of furniture, and somehow, still smiling after a decade of poverty and pain from chronic disease. When we were given this family as a possible referral, we accepted them. The word “Yes”…